Children’s National has launched PROMIS for Pain Management — a Sickle Cell Disease (SCD) app. The app uses a validated NIH Patient Reported Outcomes Measurement Information System (PROMIS) to monitor Sickle Cell Disease patients after their hospital discharge.

The app setup is similar to the study launched by Children’s Hospital Los Angeles (CHLA) to monitor pain levels in Sickle Cell Disease patients. In the CHLA study, the R-Helper app is a supplement to a larger NIH study looking at the pathophysiology of Sickle Cell Disease and identifying key biomarkers.

Similar to the CHLA Sickle Cell Disease app, the PROMIS for Pain Management app will use a reward system to help increase patient reporting.

The long term goal of the study is to improve outpatient monitoring and pain management in order to help decrease readmission rates in Sickle Cell Disease patients.

The PROMIS for Pain Management app continues a trend of medical apps being utilized for clinical research. More notably we’ve seen an explosion of Apple ResearchKit apps being launched for clinical trials this year.

iOS link 
Android link

sickle cell disease app